Heather at Especially Heather wrote:
I know that there are those out there who view her only as a disability. I know that these people exist, Ive met them first hand. I also know that Emma’s voice has just as much meaning as your’s and mine. Its awkward dance has just as much passion and definition. It’s unsteady flow does not negate it’s importance. It breaks my heart when I see people in the medical field refer to children like Emma Grace as “broken”, “retarded”, “Devoid”. It saddens me to think that there are campaigns in place right now that devastate mothers as soon as their child is diagnosed. I was so blessed to have the support system I had when Emma was first diagnosed. There is so much hope in this diagnosis. So much support and love. These children have voices, they have the ability to communicate, they just sometimes do it in ways that seem so trivial and unnatural to us.
All of these children have something to say, hopefully we will all take the time to stop and truly listen.
She did a video of her beautiful daughter here:
Another beautiful kid:
And a video written by a really cool autistic kid:
My favorite lines from the last one:
“My biggest joy in life iterates your insistence that I am not disordered. Other worldly to you, but to me it’s merely my everyday splendor.”
I have long had trouble understanding the idea that people like us are somehow otherworldly, and he puts it pretty succinctly.