Daily Archives: April 9, 2006

Yet Another Blog Move, and health update


I still need to get all the posts categorized on this blog. I am liking WordPress a lot though in the meanwhile (thanks Laura). I’ve imported all my posts and comments from blogspot, and I’m working on hand-moving all the posts from the blog before that one, and then the posts rescued from Google’s cache of the one before that.

In the meantime, I’d appreciate it if people who’ve linked to my blogspot posts would (where possible) edit their links to point to posts here.

Meanwhile, in further “the cure is worse than the disease” news (and I don’t mean autism), my body seems to have decided that the best reaction to the latest migraine drug is to fill up with water just about everywhere, including (in the last few days) my lungs. So I’ve got instructions to avoid salt, take the stockings off that were controlling the swelling in my legs, try to stay upright where possible… a lot of this the exact opposite of the instructions to reduce swelling in my legs and feet. (I guess when they realize it’ll go elsewhere otherwise, they figure it’s better to let it go to feet.) In the meanwhile breathing gets really interesting when I lie down, and I’ve managed to annoy Laura to death with body-awareness questions. (I’m currently trying to ignore all unfamiliar sensations sent to me by my torso because I have little hope of understanding or even locating most of them, and I doubt worrying about it will help.)

And, yes, I’ll call someone if things get any worse. The hope is that the swelling will go down on its own in a week or two now that I’ve stopped the medication and started following those other instructions. But last night was worse than the night before, even though I stopped the medication the day before, so who knows.

This whole migraine medication mess is reminding me of a minor incident back when Michelle Dawson first became notorious and controversial in the mainstream autism world. People were saying that we were not autistic because we lacked certain traits, some of which had nothing to do with autism, and some of which did, but most of which we had or did have. The people at autistics.org posted a response listing a lot of those traits, including a lot of health problems.

At that point, one guy responded by turning it around: “If they have all those problems, and they haven’t fixed them, then why should we listen to their advice about autism? Those things are easy to fix.”

I’ve just stopped my fifth or sixth major migraine-prevention medication. In this case, it was actually working on the migraine, unlike most of the others, but is now causing intolerable and dangerous problems. I’m of course going to keep trying other things: I prefer nasty pain and puking a lot to fluid in my lungs, but I view lack of pain and lack of puking as preferable to either alternative. But this isn’t simple. There’s no formula. Even for things I would rather get rid of, it’s not like they’re simple to fix.

The guy’s reasoning was off in several ways to begin with, but this particular medication mess makes it clear how far off one of those ways is.

Anyway, new blog, yet again. I like this one better than either blogger or the previous blogging software I had.