Candida: False and otherwise

Standard

Years and years ago, I was ‘treated’ for non-existent systemic candida. Systemic candida infections generally only occur in people who have severe immune deficiency, like people with AIDS. But they are commonly, and falsely, blamed for everything from autism to chronic fatigue syndrome, anything that’s currently incurable and thus an easy target for people to make money selling cures for.

I was given a test that showed that I had candida in my body (so does everyone, it’s a normal part of the body, but the quacks don’t tell you that). My parents and I were told that I needed to follow a very limited diet (not just the infamous “candida diet”, but a diet free of foods the guy claimed I was allergic to, that I am not in fact allergic to). And I was supposed to take heavy-duty oral anti-fungals. Ones with serious side-effects.

The anti-fungals made me violently ill. I spent the entire day vomiting. The fact that this can be a side-effect is one reason that these drugs are not meant for use unless someone truly needs them. Instead of considering it a side-effect, the doctor told my mother that I would never “get better” unless I continued to take it and that I had to “get worse” before I could get better. He said that I wouldn’t have that reaction if I didn’t have systemic candidiasis (it’s, in reality, a common reaction whether or not you have a fungal infection of any kind). There was a concerted effort to guilt-trip me into taking the drug.

I stopped taking the drug anyway, because I couldn’t be persuaded to take it again and people decided not to force the issue. But I stayed on the diet for a long time. The diet caused the immediate positive-seeming effects that any restrictive diet causes anyone (google the word orthorexia to see what I mean), and then over the course of a long period of time I got less and less nutrients and felt worse and worse. I was finally persuaded to stop the diet, at which point I got healthier and healthier.

Fast forward to the present day. I’d started discovering bright red patches under my breast, sometimes with little white flakes on them. I showed one to a friend, and she said it looked like her candida skin fold infections (the kind of candida infections that even people with perfectly fine immune systems get). It started sort of coming and going. I showed it to one of my case managers, a nurse, who said she’d contact a doctor about a prescription of something for it. She agreed that it looked like a standard fungal skin fold infection. And she agreed that even when it wasn’t visible it wasn’t really going away, and needed treatment.

So I went to a doctor about two other (and completely unrelated, as far as I know) skin problems. In passing, I mentioned the under-breast thing. At which point he looked under the other breast (the one that didn’t have the redness under it to begin with) and said he didn’t see anything. Then his supervisor looked under the correct breast (the one with usually the redness) and the redness wasn’t there. I told them that my friend had seen the redness, the nurse had seen the redness, it was coming and going on a regular basis, and that the visiting nurses were supposed to have a piece of fabric they could stick between my breast and the skin beneath it, and were supposed to talk to the doctor about ordering a (topical, not oral, of course) medication, like a powder or cream, to put on it. They said that sounded like a reasonable thing to do to it.

My nurse called the doctor’s office, and was told by the people there that the doctors had not seen anything under my breast and were therefore not going to do anything about it. Apparently her having seen something and my friend having seen something and me having seen something didn’t count for anything, it had to be there right when the doctor looked.

That was yesterday. Today it hurt a lot under my breast. I looked and there is a large, unmistakable bright red streak with little white flakes all over it. I just took it next door to my friend so that she could witness in the future that indeed this thing does exist and that I am not making up tales of a vague fictional phantom breast streak. She said that this time it’s totally unmistakable what it is, and that it’s much worse than before.

But I have no cream or powder to put on it, and no fancy cloth things to stick to it to keep the skin from touching other skin. Because unless a doctor saw it happening, as it was happening, then a nurse’s word, my own word, and a friend’s word, combined, are apparently not enough.

So I was once described as having a systemic candida infection, when I had no such thing, simply because I was autistic and someone ran some dubious tests. And the doctor nearly tried to shove a treatment down my throat with assorted dire threats if I didn’t follow a ridiculous treatment for a non-existent infection. Now I have a real, absolutely obvious, can’t be missed skin infection that is probably candida and that hurts. And the doctor is claiming that it doesn’t exist enough to treat because the one morning I was in his office it wasn’t visible. I think the universe must be playing a bizarre joke on me, because it seems ridiculous.

About Mel Baggs

Hufflepuff. Came from the redwoods. Crochet or otherwise create constantly and compulsively. Write poetry and paint when I can. Physically and cognitively disabled. Anything you hear in the media or gossip is likely to be oversimplified at best and wildly inaccurate at worst, the only way to get to know me is to actually know me. I'm not really part of any online faction or another, even ones that claim me as a member. The thing in the world most important to me is having love and compassion for other people, although I don't always measure up to my own standards there by a longshot. And individual specific actions and situations and contexts matter a lot more to me than broadly-spoken abstract words and ideas about a topic. My father died a couple years ago and that has changed my life a lot in ways that are still evolving, but I wear a lot of his clothes and hats every day since he died and have shown no sign of stopping soon.

6 responses »

  1. HIe !! i also am a candida sufferer. this is due to multitudes of antibiotics i ate during my childhood and my diet which consists of my love foods of Bread , cakes , and anything in maximum consisting of FLOUR , YEAST AND SUGAR
    I can only prescribe u to adhere to anti candida diet .
    and this product which i have been consuming for some time..
    http://www.omx2u.com – its under Dr. ohhira , friendly bacteria ..
    unlike Lactobacillus acidophilus which consists less friendly bacteria .. or threelac which has 3 strains only .. the japanese has found the best live friendly bacteria unlike the synthetic ones sold in the pharmacy

    i hope u can avoid DRUGS which is detrimental to your health .. and practice wholesome foods.. and researched collectively on treatments on nutrition not DRUGS .. cos its temporarily and struck teh symptom not disease ..

    i am also eating this supplement under dr. jau fei chen. http://www.eexcel.net which emphasizes on nutritional immunology .

    not a magic with severe effects pills like drugs but consistent
    convenient nutrition to build your immune ssytem which like me is weaken leading to CANDIDA …

    if i have the money, i would go for colon hydrotheraphy which a lot of ppllike anthony robbins do to cleanse your gut ..

    i hope my comments help.

  2. Sorry, but you’re pretty much exemplifying everything quack that was already tried for candida infections I didn’t even have, and that made me very sick in the process. I’m not going to go that route again.

    I do, however, have medication by now, it’s just a matter of being able to apply it regularly.

  3. Candida overgrowth is real and the longer it is ignored the longer it takes to get rid of it. I think if your immune system was strong, you wouldn’t show the manifistations of the fungus in other areas of your body- thrush, yeast infections, jock itch, etc. Unlike you, I told my dr. that i thought i had it and was treating myself. She ignored me for over a year and now I have it so bad that i can’t eat anything (because it makes me sick) off the candida detox list, which is close to nothing. I don’t think it is true that only people with compromised immune systems get systemic candida. I got it from taking a long dose of anti inflamatories that damaged the lining of my stomach. It’s possible that you have something that is weaking your immune system that your unaware of like EBV. Stress, deficiencies, allergies, poor diet, etc. can all make weaken your system. I’ve heard that the meds can make you sick when the fungus is dying off, but I also understand that it’s temporary. There are tests for candida, which give the IGA, IGG, IGM and another that will tell you whether or not it is systemic. I went to an integrative med dr. for these tests My general practitioner missed it entirely. Good Luck.

  4. Yes, it is indeed interesting that previously you didn’t see candida, thus thought it didn’t exist, and the doctors don’t see it now, and thus don’t think it exists. I’ve been on the candida diet for years. I was really, really, ill. The diet does make you feel worse before you feel better. It’s all about detox reactions. Now, I’m so healthy and happy and full of energy. I will never (apart from christmas maybe) eat sugar, wheat or dairy again, or drink alcohol again, and this has changed my life. It was a hard ole road though. I sacked doctors, because in my experience they know bugger all about anything they can’t see, or anything that isn’t common knowledge in the medical profession – knowledge which generally gets passed down through drug companies funding research into medications. News Target is a good site too.
    Lots of love, Kaetie
    http://kaetiekalfou.eponym.com

  5. No, it wasn’t “candida that didn’t exist,” it was normal levels of candida that exist in everyone, but that were not infections, and were being treated as if they were infections so a particular doctor could make money. I don’t think you can blame the drug companies because I was given some pretty powerful oral anti-fungals too — i.e. drugs. That “detox reaction” is a standard quack excuse for a treatment that makes you sicker.

  6. Sorry, Amanda. Let’s see if *I* get your point: You are commenting on the *irony* of it all, and the prejudice/arrogance involved when folks make diagnoses — or refuse to — on the basis of their immediate impressions of you rather than the basis of logic. You are not sending out a petition for a revolutionary treatment for candida. Correct?

    (I wonder how many people spend time Googling “candida” so they can peddle products.)

    I was expecting a completely different post, based on the title and the juxtaposition between “false” and, uh, “candida”.

    Anyway, hope your boobie feels better. ; )

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