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	<title>Comments for Ballastexistenz</title>
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	<link>http://ballastexistenz.wordpress.com</link>
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	<lastBuildDate>Wed, 08 May 2013 11:33:34 +0000</lastBuildDate>
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		<title>Comment on Feeding tubes and weird ideas by Jay Sheckley</title>
		<link>http://ballastexistenz.wordpress.com/2013/05/02/feeding-tubes-and-weird-ideas/#comment-24555</link>
		<dc:creator><![CDATA[Jay Sheckley]]></dc:creator>
		<pubDate>Wed, 08 May 2013 11:33:34 +0000</pubDate>
		<guid isPermaLink="false">https://ballastexistenz.wordpress.com/?p=1514#comment-24555</guid>
		<description><![CDATA[I heard about you from Love SS and love your blog. i think all health professionals should take an ethics course based on this. You are IMPORTANT. Thank you on behalf of the human race]]></description>
		<content:encoded><![CDATA[<p>I heard about you from Love SS and love your blog. i think all health professionals should take an ethics course based on this. You are IMPORTANT. Thank you on behalf of the human race</p>
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		<title>Comment on Communication page I used to handle that invasive woman I met. by Welcome to Autistification! &#124; Autistification</title>
		<link>http://ballastexistenz.wordpress.com/2012/06/25/communication-page-i-used-to-handle-that-invasive-woman-i-met/#comment-24549</link>
		<dc:creator><![CDATA[Welcome to Autistification! &#124; Autistification]]></dc:creator>
		<pubDate>Mon, 06 May 2013 22:33:51 +0000</pubDate>
		<guid isPermaLink="false">https://ballastexistenz.wordpress.com/?p=1478#comment-24549</guid>
		<description><![CDATA[[...] ways to communicate my boundaries&#8221; (Amanda Baggs has an excellent post on that here). For others, it will mean learning life skills that neurotypical people may take for granted, such [...]]]></description>
		<content:encoded><![CDATA[<p>[...] ways to communicate my boundaries&#8221; (Amanda Baggs has an excellent post on that here). For others, it will mean learning life skills that neurotypical people may take for granted, such [...]</p>
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		<title>Comment on Feeding tubes and weird ideas by Rose</title>
		<link>http://ballastexistenz.wordpress.com/2013/05/02/feeding-tubes-and-weird-ideas/#comment-24545</link>
		<dc:creator><![CDATA[Rose]]></dc:creator>
		<pubDate>Sat, 04 May 2013 18:42:58 +0000</pubDate>
		<guid isPermaLink="false">https://ballastexistenz.wordpress.com/?p=1514#comment-24545</guid>
		<description><![CDATA[I spent one year as the head teacher in a SPD (severe and profound disabilities) where only two children were nourished without  feeding tubes.  I still laugh and marvel at the characters that they were.  To think they weren&#039;t deserving of life...seems vicious.]]></description>
		<content:encoded><![CDATA[<p>I spent one year as the head teacher in a SPD (severe and profound disabilities) where only two children were nourished without  feeding tubes.  I still laugh and marvel at the characters that they were.  To think they weren&#8217;t deserving of life&#8230;seems vicious.</p>
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		<title>Comment on Feeding tubes and weird ideas by Verdandi</title>
		<link>http://ballastexistenz.wordpress.com/2013/05/02/feeding-tubes-and-weird-ideas/#comment-24543</link>
		<dc:creator><![CDATA[Verdandi]]></dc:creator>
		<pubDate>Sat, 04 May 2013 02:41:08 +0000</pubDate>
		<guid isPermaLink="false">https://ballastexistenz.wordpress.com/?p=1514#comment-24543</guid>
		<description><![CDATA[I have to agree - your cyborging seems pretty cool. It&#039;s good to hear it solved so many problems for you. The attitudes of medical professionals you describe is extremely frustrating to me because not only do they consistently rate PWD quality of life lower than we rate it ourselves, but they also consider their ratings objective and our ratings subjective.

I am glad that you were able to get through all that prejudice to get your tube. I am frustrated that all that effort was necessary in the first place.]]></description>
		<content:encoded><![CDATA[<p>I have to agree &#8211; your cyborging seems pretty cool. It&#8217;s good to hear it solved so many problems for you. The attitudes of medical professionals you describe is extremely frustrating to me because not only do they consistently rate PWD quality of life lower than we rate it ourselves, but they also consider their ratings objective and our ratings subjective.</p>
<p>I am glad that you were able to get through all that prejudice to get your tube. I am frustrated that all that effort was necessary in the first place.</p>
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		<title>Comment on Trendie Tubies by Littlewolf</title>
		<link>http://ballastexistenz.wordpress.com/2013/05/02/trendie-tubies/#comment-24539</link>
		<dc:creator><![CDATA[Littlewolf]]></dc:creator>
		<pubDate>Fri, 03 May 2013 01:57:23 +0000</pubDate>
		<guid isPermaLink="false">https://ballastexistenz.wordpress.com/?p=1518#comment-24539</guid>
		<description><![CDATA[Coolness -- thanks for sharing. I don&#039;t have a feeding tube, but if at some point I ever need one, I hope I remember that these exist. I like the owls too (reminds me of Harry Potter!) :)]]></description>
		<content:encoded><![CDATA[<p>Coolness &#8212; thanks for sharing. I don&#8217;t have a feeding tube, but if at some point I ever need one, I hope I remember that these exist. I like the owls too (reminds me of Harry Potter!) :)</p>
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		<title>Comment on BADD:  Caregiver abuse takes many forms by Love me or hate me, this is my response to a comment that to me tipifys the worst aspects of the Autism Community. &#124; seventhvoice</title>
		<link>http://ballastexistenz.wordpress.com/2012/04/30/badd-caregiver-abuse-takes-many-forms/#comment-24534</link>
		<dc:creator><![CDATA[Love me or hate me, this is my response to a comment that to me tipifys the worst aspects of the Autism Community. &#124; seventhvoice]]></dc:creator>
		<pubDate>Wed, 01 May 2013 14:35:45 +0000</pubDate>
		<guid isPermaLink="false">https://ballastexistenz.wordpress.com/?p=1463#comment-24534</guid>
		<description><![CDATA[[...] “There are plenty of wonderful parents out there, like this one: http://emmashopebook.com/2013/04/04/what-i-wish-id-been-made-aware-of-when-my-daughter-was-diagnosed-with-autism/. I am deeply grateful to the parents who are willing to stand up to society for their children’s rights. I applaud parents who refuse to believe the experts who tell them that their child cannot learn, or that those children should be forced to endure things they find traumatic for the sake of looking normal (http://juststimming.wordpress.com/2011/10/05/quiet-hands/), or that the caregiver is always right (http://ballastexistenz.wordpress.com/2012/04/30/badd-caregiver-abuse-takes-many-forms/).” [...]]]></description>
		<content:encoded><![CDATA[<p>[...] “There are plenty of wonderful parents out there, like this one: <a href="http://emmashopebook.com/2013/04/04/what-i-wish-id-been-made-aware-of-when-my-daughter-was-diagnosed-with-autism/" rel="nofollow">http://emmashopebook.com/2013/04/04/what-i-wish-id-been-made-aware-of-when-my-daughter-was-diagnosed-with-autism/</a>. I am deeply grateful to the parents who are willing to stand up to society for their children’s rights. I applaud parents who refuse to believe the experts who tell them that their child cannot learn, or that those children should be forced to endure things they find traumatic for the sake of looking normal (<a href="http://juststimming.wordpress.com/2011/10/05/quiet-hands/" rel="nofollow">http://juststimming.wordpress.com/2011/10/05/quiet-hands/</a>), or that the caregiver is always right (<a href="http://ballastexistenz.wordpress.com/2012/04/30/badd-caregiver-abuse-takes-many-forms/" rel="nofollow">http://ballastexistenz.wordpress.com/2012/04/30/badd-caregiver-abuse-takes-many-forms/</a>).” [...]</p>
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		<title>Comment on I&#8217;m starting to heal here. by Verdandi</title>
		<link>http://ballastexistenz.wordpress.com/2013/04/11/im-starting-to-heal-here/#comment-24533</link>
		<dc:creator><![CDATA[Verdandi]]></dc:creator>
		<pubDate>Wed, 01 May 2013 10:37:39 +0000</pubDate>
		<guid isPermaLink="false">https://ballastexistenz.wordpress.com/?p=1506#comment-24533</guid>
		<description><![CDATA[I caught some of this story a month or so ago. I&#039;m glad you got through it and past the self-appointed gatekeepers.]]></description>
		<content:encoded><![CDATA[<p>I caught some of this story a month or so ago. I&#8217;m glad you got through it and past the self-appointed gatekeepers.</p>
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		<title>Comment on A bunch of stuff that needed saying by Verdandi</title>
		<link>http://ballastexistenz.wordpress.com/2013/04/18/a-bunch-of-stuff-that-needed-saying/#comment-24532</link>
		<dc:creator><![CDATA[Verdandi]]></dc:creator>
		<pubDate>Wed, 01 May 2013 10:31:25 +0000</pubDate>
		<guid isPermaLink="false">https://ballastexistenz.wordpress.com/?p=1509#comment-24532</guid>
		<description><![CDATA[I appreciate this post, and it&#039;s a vital reminder that needs to be brought up again and again in the parts of the autistic community that I&#039;ve been around. I don&#039;t even try to count how many times some autistic people will invoke the idea of a segment of the autistic population who are supposedly completely and utterly incapable of any communication and thus should not be allowed self-determination - this is brought up in many kinds of arguments (cure debates are a common one) but you&#039;ve probably seen that more often than I have.

I can relate to some of what you say about the nonverbal communication as well, but I feel like I could get stuck in endless anecdotes. Mostly I can say that &quot;In My Language&quot; was probably the catalyst for me in understanding that I am autistic, and to some extent it&#039;s because the video itself made sense to me. I appreciate what you say because it is so important and so often neglected or even actively excluded by others.

It&#039;s frustrating to so frequently see other autistic people assign value or agency to other autistic people on the basis of how they communicate, or whether they communicate in &quot;accepted&quot; ways.

Also, as far as nonverbal communication goes, I am terrible at the various tests that test this, but I find I am fairly good at picking up emotions, guessing when someone is hiding something or lying to me, and sometimes determining their actual motives. In some situations in the past I have guessed information about social interactions that the people involved swore vigorously that I could not have known without someone explicitly telling me. I&#039;ve sort of been going over this with my therapist, and I&#039;ve tried to find some way to explain it because it is not the way NTs do things, but there are many situations where it doesn&#039;t help me much, either.]]></description>
		<content:encoded><![CDATA[<p>I appreciate this post, and it&#8217;s a vital reminder that needs to be brought up again and again in the parts of the autistic community that I&#8217;ve been around. I don&#8217;t even try to count how many times some autistic people will invoke the idea of a segment of the autistic population who are supposedly completely and utterly incapable of any communication and thus should not be allowed self-determination &#8211; this is brought up in many kinds of arguments (cure debates are a common one) but you&#8217;ve probably seen that more often than I have.</p>
<p>I can relate to some of what you say about the nonverbal communication as well, but I feel like I could get stuck in endless anecdotes. Mostly I can say that &#8220;In My Language&#8221; was probably the catalyst for me in understanding that I am autistic, and to some extent it&#8217;s because the video itself made sense to me. I appreciate what you say because it is so important and so often neglected or even actively excluded by others.</p>
<p>It&#8217;s frustrating to so frequently see other autistic people assign value or agency to other autistic people on the basis of how they communicate, or whether they communicate in &#8220;accepted&#8221; ways.</p>
<p>Also, as far as nonverbal communication goes, I am terrible at the various tests that test this, but I find I am fairly good at picking up emotions, guessing when someone is hiding something or lying to me, and sometimes determining their actual motives. In some situations in the past I have guessed information about social interactions that the people involved swore vigorously that I could not have known without someone explicitly telling me. I&#8217;ve sort of been going over this with my therapist, and I&#8217;ve tried to find some way to explain it because it is not the way NTs do things, but there are many situations where it doesn&#8217;t help me much, either.</p>
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		<title>Comment on A bunch of stuff that needed saying by Athena</title>
		<link>http://ballastexistenz.wordpress.com/2013/04/18/a-bunch-of-stuff-that-needed-saying/#comment-24531</link>
		<dc:creator><![CDATA[Athena]]></dc:creator>
		<pubDate>Wed, 01 May 2013 05:03:03 +0000</pubDate>
		<guid isPermaLink="false">https://ballastexistenz.wordpress.com/?p=1509#comment-24531</guid>
		<description><![CDATA[The &#039;notify of follow-up comments&#039; feature appears to suck. And possibly be broken.

There is definitely a commonality of root/cause, yes. I was more referring to the result of what shows on the surface and tends to get studied.

We tend to be different frequently in a lot of the same things, which highlights a similar or same underlying cause, but the *ways* in which we are different vary a lot. As I said, most of the criteria seems to keep coming back to, instead of &#039;displays x&#039; like many conditions, &#039;displays any variation of x that NTs don&#039;t&#039;.

Clearly there are commonalities somewhere along the line, or it wouldn&#039;t all be considered the same condition. My point was just that it adds to the difficulty of studying autism because most people seem to think of it as a condition in the way many others are, with one defined set of symptoms and few variations. A lot of people seem to miss the fact that it&#039;s more like a mix-and-match grab-bag of possibilities - at least on the outside, where they&#039;re trying to observe it.]]></description>
		<content:encoded><![CDATA[<p>The &#8216;notify of follow-up comments&#8217; feature appears to suck. And possibly be broken.</p>
<p>There is definitely a commonality of root/cause, yes. I was more referring to the result of what shows on the surface and tends to get studied.</p>
<p>We tend to be different frequently in a lot of the same things, which highlights a similar or same underlying cause, but the *ways* in which we are different vary a lot. As I said, most of the criteria seems to keep coming back to, instead of &#8216;displays x&#8217; like many conditions, &#8216;displays any variation of x that NTs don&#8217;t&#8217;.</p>
<p>Clearly there are commonalities somewhere along the line, or it wouldn&#8217;t all be considered the same condition. My point was just that it adds to the difficulty of studying autism because most people seem to think of it as a condition in the way many others are, with one defined set of symptoms and few variations. A lot of people seem to miss the fact that it&#8217;s more like a mix-and-match grab-bag of possibilities &#8211; at least on the outside, where they&#8217;re trying to observe it.</p>
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		<title>Comment on A bunch of stuff that needed saying by Amanda Baggs: A Bunch of stuff that needed saying &#124; Autism Positivity Day Flash Blog</title>
		<link>http://ballastexistenz.wordpress.com/2013/04/18/a-bunch-of-stuff-that-needed-saying/#comment-24529</link>
		<dc:creator><![CDATA[Amanda Baggs: A Bunch of stuff that needed saying &#124; Autism Positivity Day Flash Blog]]></dc:creator>
		<pubDate>Tue, 30 Apr 2013 16:45:41 +0000</pubDate>
		<guid isPermaLink="false">https://ballastexistenz.wordpress.com/?p=1509#comment-24529</guid>
		<description><![CDATA[[...] post was originally published by Amanda Baggs on Ballastexistenz, at http://ballastexistenz.wordpress.com/2013/04/18/a-bunch-of-stuff-that-needed-saying/. It is reprinted here with permission from the [...]]]></description>
		<content:encoded><![CDATA[<p>[...] post was originally published by Amanda Baggs on Ballastexistenz, at http://ballastexistenz.wordpress.com/2013/04/18/a-bunch-of-stuff-that-needed-saying/. It is reprinted here with permission from the [...]</p>
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