Trendie Tubies

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[A makeshift clothes line made by tying yarn up on a bookshelf. Clipped to it are three cloth circles. One is a yellow cat on a black background, another is light brown owls on a light green background, and the last is blue flowers on a white background.]

I don't normally advertise products here, but I thought anyone using a feeding tube might be interested in these things. They are called Trendie Tubies. They are absorbent cloth pads, in a variety of styles, designed to be used around the opening of your feeding tube once it's healed enough to stop needing the kind of dressings you might need right after the surgery.

I absolutely love them. They're absorbent, they're comfortable, they don't feel anything as awful as having dressings taped to your skin. They're very soft. And they have all kinds of neat designs. My favorite is the owls. Here is a picture of what they look like when they're being used:

[Photo of a Trendie Tubies thing with blue flowers, on a GJ tube over light skin with blue clothes surrounding it.]

They have a little Velcro thing you can't see, so they can fit around all different sizes and kinds of tubes.

Here's what their About page says, so I don't end up paraphrasing it:

Trendie Tubies Accessories are hand crafted by a Mother-Daughter Duo.

All items are handcrafted and not mass produced so each item is unique and will not be uniform.

Trendie Tubies are a comfortable & absorbent machine washable pad that helps with the leakage that is common with G-tubes,

J-tubes and GJ-tubes. They work for both button tubes and peg tubes and even trach's!

Each Trendie Tubie Accessory is approximately 2 3/4 inches round and made up of 3 layers of fabric sewn together.

-The top layer is a soft flannel with a cute design of your choice.

-The middle layer is cotton terry cloth to absorb any moisture and leakage.

-The bottom layer is fleece for a soft comfortable feeling next to the skin preventing irritation and granulation tissue.

-They have a small Velcro tab for easy closure and are double zig-zag stitched to minimize fraying edges.

All materials have been pre-washed.

Allergy Alert – We have an extended family of dogs, cats & horses…be aware just in case allergies are a concern.

We strive for 100% customer satisfaction.Your comments & feedback are always appreciated.

Here's a link to the Trendie Tubies website, where you can buy them.

I bought one for every day of the week. Three owls, two cats, two flowers. I can't recommend them highly enough. And I'm posting this because, as far as I know, most people haven't heard of things like this. The VNA wanted me using gauze dressings the rest of my life, which I really didn't want. They say they're machine washable but we've been hand washing them because it's more convenient, then hanging them up on the bookcase to dry.

 

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About Mel Baggs

I am a highly sensing person. I am a child of earth and water, I was born into a redwood forest and I left the forest but it never left me. I'm 34 as I wrote this. If I had an alignment like in role-playing games and MUDs, I'd be chaotic good all the way: I don't think it's possible to fill ethics into a moral code, the world is far too complex for that. I let the world be complex and chaotic and try to respond situation by situation from a small number of principles of right and wrong. My responses may seem to contradict each other, but that will be because either the situation has changed, or I have changed. I am a poet who is trying to practice more every day, hence the poetry blog. I am a cat lover and live with a wonderful elderly cat. I am a painter when I have the time, energy, and resources. I have multiple cognitive, physical, developmental, and psychiatric disabilities, and my health is not usually stable. Put all together, I'd be considered severely disabled. I get a lot of assistance throughout the day. I am a real living cyborg, part human part machine: I have a GJ feeding tube to feed me through one tube and drain my stomach through the other,, an InterStim implant for urinary retention, and a port (a permanent central IV line). I love life. I think Love (not the sentimental emotion, but the property of the world) is the most important thing that human beings can offer each other. Being near death enough times has taught me that, and has also taught me that I have no time for bullies or pettiness. I'm involved in disabilty rights and other causes that people these days would call 'social justice', but I don't consider myself part of the 'SJ community' or the 'anti-SJ community' because of that thing I said about pettiness -- they're more about one-upmanship than fixing the world. I wish they had not taken over the words 'social justice', which used to mean something else. I love talking to just ordinary people about fixing the world, they have far more realistic ideas and more likelihood of putting them into practice. I'm a Hufflepuff to the core, with some Gryffindor tendencies and even a little bit of Ravenclaw. I admire some Slytherins but I don't have much ambition or cunning at all. I still think the Slytherin common room is second best, with Hufflepuff coming first. My favorite color is brown, especially when combined with a bit of yellow or blue. My favorite music is country, and my favorite country artists are Kathy Mattea, Lacy J. Dalton, Kris Kristofferson and Rita Coolidge, Merle Haggard, and Loretta Lynn. I don't like most new country but i occasionally hear something on the radio I like. At an early age, my family listened to country almost exclusively to the point where I thought all the different types of country were all the different types of music! I couldn't put Lacy J. Dalton, Buffy Sainte-Marie, Dolly Parton, Merle Haggard, and Kris Kristofferson in the same category. Although now that I've grown up I can hear that they are all country, but as a kid my ear was trained more for minute differences in country styles, than for recognizing country from other types of music. Country isn't all I like. Some other bands and artists I like: The Cocteau Twins, Dead Can Dance, Rasputina, Jefferson Airplane, The Beatles, Rich Mullins (I'm not Christian but some Christian music is amazing), ), The Raventones/T.R. Kelley, Planet P Project/Tony Carey, Sinead Lohan, Donna Williams, Suzanne Vega, Phideaux, and Jethro Tull, to name a few. I love the Cocteau Twins in particular because they are everything being sensing is about: Words are chosen for their sound, not their meaning, the voice becomes yet another instrument rather than a conveyor of words, raw emotion pours out of them, there are layers upon layers, and they were around for long enough there's lots of their music in a variety of different styles -- including their later stuff where the words have more meaning than just sounds. Each period in their music has its benefits and drawbacks but I love them all, or nearly so. Their music comes as close as any music can come to conveying how I experience the world, as what Donna Williams calls 'pattern, form, and feel'. And Elizabeth Fraser has a beautiful voice, I once had a teenage crush on her. As I type this, I have a cat sitting on my shoulder, cheek to cheek with me, peering around and occasionally rubbing me. My relationship to her goes back 15 years to when she was six months old, and we've rarely been parted since. It's been an honor to watch her grow into a wise but crotchety old lady cat. She knows she's technically older than me and tells me so sometimes, especially during arguments. She has trouble with the fact that there are parts of the human world I know better than she does. She sees me as her big, dumb kitten who needs protecting, and is beside herself with worry if I end up in the hospital (which seems to happen frequently these days). I don't experience myself as having a gender identity, I call it being genderless. You'll sometimes see the pronouns sie and hir in my work, they are gender-neutral pronouns pronounced 'see' and 'hear'. I was raised female, which gives me both disadvantages (outside the trans community) and advantages (inside the trans community). You don't have to remember my pronouns, lots of people have trouble with gender-neutral pronouns. I won't be upset with you. People make mistakes, and some people just can't get the hang of new words, and that's okay. I have vocabulary problems myself (mostly comprehension), I'm not going to penalize other people for having vocabulary problems of their own. Right now my father is dying of cancer that's metastatized so many places they can't figure out where it started, my mother has severe myasthenia gravis that can land her in the ICU (and she's my father's primary caretaker), my "second mother" (who took over when I grew up and my family didn't know how to prepare me for the world) has endometrial cancer, and my cat is getting old. All of this is bringing death to the forefront of my mind and my poetry. In fact I think I've been able to write more poetry because of all the feelings about so many people dying or with precarious health. It was easier to handle when it was me that was going to die (averted by diagnosis and treatment of severe adrenal insufficiency that'd been going on for years). It's harder when it's someone else, someone you love. My other hobby is crocheting, and a lot of the time if I'm not writing, it'll be hard to find me without a crochet hook or occasional knitting needles in my hands. I love to be able to make things. I have been making hats and scarves with spare yarn (which I have a lot of), and putting them in City Hall Park wrapped in plastic, with notes saying "If you're cold, take this." I know what it's like to be cold in the winter, and if anyone takes them and stays warm I'd be overjoyed. You may have noticed I'm long-winded. This is actually the result of a language disability that makes it difficult for me to leave out details, to see two almost-identical things as perhaps something that doesn't need repeating, and to summarize or condense down my writing. I know this is a flaw in my writing, and it even prevents me from reading it sometimes, but I've found no solutions. Sometimes on my longer posts I'll put a "TL;DR" ("too long; didn''t read") summary at the end in bold letters for people to skip down to.. But even those don't feel adequate, even when I can do theme, which is not always. I think I'm getting better though. Learning haiku and other short poetry forms helps me condense my words better. Anyway, I hope that gives you enough idea of who I am. At my most basic, I care about Love more than anything (whenever I come near enough to death, I feel like I get asked the question "Did you Love, and did you express that Love properly?"), but like everyone I get sidetracked into things that are much less important. I try to make my writing an expression of Love. Sometimes I succeed.

4 responses »

  1. Coolness — thanks for sharing. I don’t have a feeding tube, but if at some point I ever need one, I hope I remember that these exist. I like the owls too (reminds me of Harry Potter!) :)

  2. Amanda–
    This is unrelated to the above post. Not sure how else to contact you; sorry about that. I was wondering if you might be willing to link to my autism memorial site, so that it can get more exposure.

    The idea of the memorial is to gather profiles of people who died because of prejudice against autistic people. There are other sites which do the same thing, mostly with lists of names; I’ve used the information I can find to gather the names from multiple sources, create individual memorial pages for each person, and cite references.

    Site is here (trigger warning for abuse, institutions, ablist/racist/homophobic prejudice).

    http://autism-memorial.livejournal.com/

    Right now I have 127 profiles, and I’m learning how to do better research so that I can get a more complete picture of the problem. My main blog (http://chaoticidealism.livejournal.com/) gets some traffic, but I know yours gets a lot more, and I am very frustrated with how little attention these cases get. I deliberately don’t name the murderers; they get enough publicity as it is, often much more than their victims. Especially for deaths in institutions, sometimes the only evidence I can find that the person even existed is a years-old news article with very little detail. I think that’s unfair. I think people deserve to be remembered.

    I don’t know what your policy is on linking to somebody else’s site. I know some people avoid it because it’s hard to predict what somebody else will say, and other people will assume you endorse it. However, if it is something you’d like to do, I’d appreciate it. I’m going to keep the memorial mostly non-political, focusing on the people who died, trying to keep them from being forgotten. Sometimes I’ll comment on a case, but I’ll do that mostly on my main blog.

    If you do post it, attach trigger warnings, just in case. The memorials do talk about how these individuals died, and I do not want people to get flashbacks on my account.

    Sorry about commenting on your blog post instead of e-mailing you. I didn’t have an e-mail. So I guess you can just delete this once you’ve read it and decided one way or the other.

    Lisa Daxer

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